Amaya Sáez, director of the Menudos Corazones Foundation, explains to our site his work to help children with heart problems and their families. From the moment parents find out that their child has heart disease, they have to face a very tough situation from an emotional point of view. Their psychological support is essential to face the disease, as well as the help they offer to families without resources.
What is the work of the Menudos Corazones Foundation?
It covers all the psychosocial aspects that may affect these families from the moment they find out that their child has heart disease. We try to give them emotional support and accompaniment. We put families in contact so that their members do not feel alone and can share the same problems. We help sick children, who usually suffer several hospital admissions, by scheduling different activities to break their routine and make them more entertained. Outside the hospital, we help them integrate so that they can lead as normal a life as possible.
How do you help families without resources?
We have a free accommodation program in Madrid for families who come from other autonomous communities and who have to come displaced for their children to be treated here. We have an agreement with a hotel chain, which gives us three rooms free of charge for these families, during the entire time the child's hospitalization lasts. We also have a reception flat, and soon, we are going to open another one, which has three rooms where three families can stay for the duration of their children's hospitalization.
And for bereaved families?
For bereaved families, we have support groups led by a psychologist. Meetings are held once a month at the Foundation's headquarters to offer coping guidelines to experience grief and therapies to overcome the situation.
Read the first part of the interview. Congenital heart disease. Interview with Amaya Sáez
Gratitude: Menudos Corazones Foundation
You can read more articles similar to Little Hearts. Children with heart problems, in the category of Childhood Illnesses on site.